Who We Are

Welcome to the Huntington's Disease Society of America's (HDSA) North Carolina Chapter. We are a part of HDSA's South Region.


Our Mission

To improve the lives of everyone affected by Huntington's disease and their families.


About HDSA

The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.

HDSA Centers of Excellence in our area

The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research. HDSA currently has 54 Centers of Excellence across the United States. Our region is fortunate to have these institutions as part of this outstanding program:

Duke University (NC)

At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.

For the exact address of each HDSA Center of Excellence, click here for our Locate Resources page


For local news, events, and updates please contact our North Carolina Chapter.
NC Chapter email: northcarolina@hdsavolunteer.org 

HDSA North Carolina Board Members
President: McKenzie Luxmore
Secretary: Oviya Kalaivanan

Please email McKenzie if you are interested in learning more about joining the board!

HDSA South Regional Development Officer
Melissa Wind
P. (605) 799-5812
E. mwind@hdsa.org

Thomas Ritch
E. tritch@hdsa.org

To contact the HDSA national helpline, please call 800-345-HDSA. The HDSA national helpline is open from 9:00 a.m. - 5:00 p.m. EST Monday through Friday.